Latino Resources

Go Wish cards order information, Frequently Asked Questions and examples of clinical uses of these Values Sorting Cards helpful when considering end of life choices are provided at this site. The Go Wish cards were created by Elizabeth Menkin, MD and the CODA Alliance to simplify advance care planning choices and assist with setting goals of care. Now available in Spanish.

Quality of life is the gold standard in palliative care. Francis Mueller, MD, Calistoga, California

Overview

Through the Journey Project, the Community Network builds upon nearly two decades of work advocating for quality, affordable neighborhood-based long-term care. Educational programming, strategic planning services, and publications offered draw upon a variety of perspectives representing the personal and professional experiences of those involved.

The basic premise of Journey Project is that wellness through the ending of life requires:

• good planning

Rooted in community, Memorial Hospice has been providing quality, compassionate hospice care and grief services to individuals and families facing life-threatening illness or the death of a loved one since 1997. Memorial Hospice and our sister program, Hospice of Petaluma, are a service of the St. Joseph Health System, a Ministry of the Sisters of St. Joseph of Orange.

Patients and families receive interdisciplinary patient care with individualized attention to nursing, psychosocial, spiritual and practical needs that may arise at the end of life. Memorial Hospice is proud of serving the Spanish-speaking community with our Latino Grief Services program and bi-lingual patient care staff. Hospice services are provided by professional staff and specially trained caregiver and grief support volunteers. Volunteer trainings are held in the spring and fall with both daytime and evening classes.

The mission of the National Institute on Minority Health and Health Disparities (NIMHD) is to promote minority health and to lead, coordinate, support, and assess the National Institutes on Health effort to reduce and ultimately eliminate health disparities. In this effort NIMHD will conduct and support basic, clinical, social, and behavioral research, promote research infrastructure and training, foster emerging programs, disseminate information, and reach out to minority and other health disparity communities. The NIMHD envisions an America in which all populations will have an equal opportunity to live long, healthy and productive lives.

Reluctant Realism
by Margaret R. McLean and Margaret A. Graham published in Issues in Ethics, Winter, 2003 Volume 14, Number 1, Markkula Center for Applied Ethics, Santa Clara University pp. 7-9.

To assist in the goal of improving the Latino health care experience in the San Jose community, 66 adults agreed to participate in a series of three focus group sessions that explored their attitudes and concerns regarding end-of-life care. This article presents their views of death and dying, their interactions with the health care system, and their concerns about discussing these issues with their families.

This advance care planning workbook was designed by and for people with developmental disabilities to enable them to do their own advance care planning. A DVD video is also available and may be previewed online. This project was created by the California Coalition for Compassionate Care, the Board Resource Center and Mark Starford who has extensive experience and expertise in adapting complex information for persons with developmental disabilities. This is also a great resource to use when working with the frail elderly, people with low reading comprehension or anytime simplification of complex advance health care planning issues would be helpful. It is also available in Spanish and Chinese.