Caring Community - National & International

AARP en español

Fri, 1 Oct 2004 21:36:37 -0700

Alzheimer's Association

Sat, 28 Jan 2012 19:15:17 -0800

The Alzheimer’s Association, the world leader in Alzheimer research and support, is a voluntary health organization dedicated to finding preventions, treatments and, eventually, a cure for Alzheimer dementia. Their mission is to eliminate Alzheimer's disease through the advancement of research and to enhance quality care and support for individuals, their families and care partners.

They provide reliable information and care consultation; create supportive services for families; increase funding for dementia research; and influence public policy changes.

The Alzheimer's Association nat

American Academy of Hospice and Palliative Medicine

Sat, 28 Jan 2012 15:09:10 -0800

AAHPM is an organization of physicians and other medical professionals dedicated to excellence in palliative medicine, the prevention and relief of suffering among patients and families by providing education and clinical practice standards, fostering research, facilitating personal and professional development of its members, and by public policy advocacy.

Americans for Better Care of the Dying

Tue, 5 Apr 2011 21:35:46 -0700

Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.

Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and other end-of-life organizations to make change happen.

ABCD President Joanne Lynn, MD is one of the foremost national leaders in this movement and the author of Handbook for Mortals: Guidance for People Facing Serious Illness; and Improving Care for the End of Life.

Caring Connections - It's About How You LIVE

Sat, 3 Jan 2009 11:23:23 -0800

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.

Caring Connections
-Provides free resources, information and motivation for actively learning about end-of-life resources.
-Promotes awareness of and engagement in efforts to increase access to quality end-of-life care.
-Helps people connect with the resources they need, when they need them.
-Brings together community, state and national partners working to improve end-of-life care.

Center for Practical Bioethics

Wed, 27 Feb 2008 09:58:34 -0800

See Midwest Bioethics Center / Center for Practical Bioethics

Center to Advance Palliative Care (CAPC)

Sat, 28 Jan 2012 17:48:03 -0800

The Center to Advance Palliative Care (CAPC) is a national initiative supported by The Robert Wood Johnson Foundation, with direction and technical assistance provided by the Mount Sinai School of Medicine (NY). CAPC provides health care professionals with the tools and training necessary to start and sustain successful palliative care programs.

CAPC publishes The Case for Hospital-Based Palliative Care-Why leading hospitals are starting palliative care programs to provide high-quality, effective management of advanced illness. Other publications include The Guide to Building A Hospital-Based Palliative Care Program, a how-to handbook with step-by-step guidance.

Chinese American Coalition for Compassionate Care

Sat, 28 Jan 2012 13:43:46 -0800

The Chinese American Coalition for Compassionate Care, the only organization in the nation devoted to end-of-life concerns in the Chinese community, is an active working coalition of over 80 organizations and a total of almost 1300 individuals.

The CACCC was formed in December 2005 to address the lack of linguistically and culturally appropriate end-of-life information and training available to the Chinese community and those who serve it. The CACCC incorporated in 2007, and achieved 501c3 tax-exempt status in the same year. A Board of Directors - 15 dedicated volunteers - sets policy for the organization. It uses the facilities of its member organizations for trainings and meetings. The coalition’s focus is helping Chinese Americans with advance care planning, assisting with palliative care and pain management, providing respite and hospice volunteer training, targeting education for members of the Chinese-American community, and meeting the critical need of educating health care professionals who serve Chinese Americans.

Compassion and Choices

Mon, 23 Jan 2012 15:44:15 -0800

Compassion & Choices is a non-profit organization dedicated to improving care and expanding choice at the end of life. They provide free client services to the terminally ill and do legal advocacy through the courts and legislatures. They inform and educate the public through the media and other outreach programs.

Consumer Help Site - National Association of Social Workers

Sat, 28 Jan 2012 15:11:09 -0800

In thousands of ways, social workers help people help themselves. People of every age. From every background. In every corner of the country - wherever we’re needed - starting here and now. Welcome to your source for professional advice, inspiring stories - even a social worker directory. Social workers. Help starts here. This website is provided by the National Association of Social Workers and includes sections on Seniors and Aging, Issues and Answers, Mind and Spirit. The Senior section includes in-depth look issues of import, real life stories shared, resources of value, current trends, helpful tip, options and other information helpful for finding one’s way through the senior years. The Health and Well Being section includes information related to death and dying, living with illness, pain management, etc. The Mind and Spirit section includes orientation to various mental illnesses, grief & loss and other helpful information.

Cross Cultural Health Care Project

Mon, 31 Oct 2005 10:17:23 -0800

Since 1992, the Cross Cultural Health Care Program (CCHCP) has been addressing broad cultural issues that impact the health of individuals and families in ethnic minority communities in Seattle and nationwide.

Through a combination of cultural competency trainings, interpreter trainings, research projects, community coalition building, and other services, the CCHCP serves as a bridge between communities and health care institutions to ensure full access to quality health care that is culturally and linguistically appropriate. For more information contact CCHCP

Dartmouth Atlas of Health Care

Wed, 25 Jan 2012 18:25:17 -0800

For more than 20 years, the Dartmouth Atlas Project has documented glaring variations in how medical resources are distributed and used in the United States. The project uses Medicare data to provide information and analysis about national, regional, and local markets, as well as hospitals and their affiliated physicians. This research has helped policymakers, the media, health care analysts and others improve their understanding of our health care system and forms the foundation for many of the ongoing efforts to improve health and health systems across America.

Hospice and Palliative Nurses Association (NHPNA)

Sat, 28 Jan 2012 15:12:25 -0800

Hospice Foundation of America

Sat, 28 Jan 2012 15:13:25 -0800

Hospice Foundation of America is a not-for-profit organization that provides leadership in the development and application of hospice and its philosophy of care. Through programs of professional development, research, public education and information, Hospice Foundation of America assists those who cope either personally or professionally with terminal illness, death, and the process of grief.

Hungry for Air On-line Support Community for COPD

Sat, 28 Jan 2012 15:15:48 -0800

This site sponsored by the American Lung Association and ALTANA Pharma provides help to sufferers, their families and caregivers. You'll find profiles of COPD patients and caregivers, practical advice and the latest information on the disease and its diagnosis. Available through 12/31/05. Site notes that more than 10 million Americans suffer from chronic obstructive pulmonary diesease (COPD). It's the fourth-leading cause of death in the U.S. and costs $37 Billion in meidcal bills per year according to 11/13/05 article in PARADE magazine. Site has Spanish language resources.