Caring Community - Disease Management

American Geriatrics Society (AGS)

Sun, 6 Jun 2010 17:17:20 -0700

Excellent resources for health in aging. Tip sheets and lots of how to for caregivers.

Americans for Better Care of the Dying

Tue, 5 Apr 2011 21:35:46 -0700

Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.

Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and other end-of-life organizations to make change happen.

ABCD President Joanne Lynn, MD is one of the foremost national leaders in this movement and the author of Handbook for Mortals: Guidance for People Facing Serious Illness; and Improving Care for the End of Life.

Caring Resources Guide

Sat, 28 Jan 2012 18:22:59 -0800

Caring Resources Guide (by the Compassionate Care Alliance of Monterey County) provides links to what may be among the best articles on the web or websites that discuss the many issues about serious illness, caregiving, end-of-life, and grief recovery. Includes information about diagnosis and prognosis, learning how to cope, disease management, and so much more as "A Gateway to Informatioin, Care Choices and Planning."

Circus of Cancer – Breast Cancer Support

Fri, 12 Dec 2008 19:54:46 -0800

Circus of Cancer-Breast Cancer Support
A how-to site to help you step right up when a friend has breast cancer. From the heart info includes: Upon first hearing the news; boosting her spirits, helping her family, supporting chemo treatments, talking to your friend, for her husband or other partner, great sites for small gifts, pink ribbons. Kelly Corrigan, initiator Circus of Cancer, first diagnosed with Stage 3 breast cancer in August 2004, and Nan Davenport, designer who together with Kelly has made educational software for kids and teachers since 1999.

Commonweal

Sat, 28 Jan 2012 15:06:45 -0800

Commonweal is a small twenty-seven-year-old health and environmental research institute in the Point Reyes National Seashore outside the coastal town of Bolinas, California.

Our principal areas of work are with (1) people with cancer and health professionals who work with people with life-threatening illnesses; (2) children and young adults with learning and social difficulties, and the childcare professionals who work with them; and (3) the global search for a healthy and sustainable future.

Franciscan Medical Group's Improving Care through the End of Life

Sat, 28 Jan 2012 18:11:40 -0800

Franciscan’s Improving Care through the End of Life program helps people live the end of their lives as fully as possible. By integrating palliative care (pain and symptom management) with education, reliable support, and links to a broad range of community and health care resources, they reach out to make sure the needs and desires of patients and their loved ones are heard, supported, and met.

Healthfinder espanol -- su guía a la información confiable de la salud

Sat, 28 Jan 2012 19:04:43 -0800

healthfinder® is an award-winning Federal Web site for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. Since 1997, healthfinder® has been recognized as a key resource for finding the best government and nonprofit health and human services information on the Internet. healthfinder® links to carefully selected information and Web sites from over 1,500 health-related organizations.

Kaiser Santa Rosa Senior Resources

Tue, 23 Jan 2007 07:39:23 -0800

Kaiser Permanente Santa Rosa Medical Center provides this site to inform seniors and their caregivers about classes and resources of value. Programs are generally open to the community-at-large and include support groups for diabetes and classes concerning mental health, advance care planning, wellness through life’s end, managing ongoing conditions and many others. A link to the Kaiser Santa Rosa education catalogue is also provided along with links to area hospices and senior resources.

National Alliance for Caregivers

Wed, 18 Apr 2007 16:59:10 -0700

The National Alliance for Caregiving was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues. The Alliance’s mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients. Established in 1996, NCA is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, professional associations, service organizations, disease-specific organizations, a government agency, and corporations.

National Heart Lung and Blood Institute

Mon, 23 Jan 2012 16:36:49 -0800

The National Heart, Lung and Blood Institute provides numerous educational materials in Spanish concerning a variety of diseases and conditions. Health Topics provides science-based, plain-language information related to heart, lung, and blood diseases and conditions and sleep disorders. The site contains articles on diseases, conditions, tests, procedures, and other relevant topics, which you can e-mail, print, and share. New topics will be added regularly.

Palliative Medicine Resource Hotline (PAL-MED CONNECT)

Sat, 14 May 2011 12:51:52 -0700

The PAL-MED CONNECT® Hotline 1-877-PAL-MED4(1-877-725-6334) provides FREE expert information, education, and resources to healthcare professionals regarding palliative care issues and solutions. This grant funded hotline is accessible 24 hours a day, 7 days a week. Physicians, physician assistants, nurse practitioners, pharmacists nurses, and other healthcare professionals can access the hotline and speak directly to clinicians. On the PAL-MED website users may access actual case studies of individuals assisted via the hotline, related research and resources. Palliative care provides advanced

Promises to Keep: Changing the Way we Provider Care at the End of Life

Wed, 25 Jan 2012 19:17:11 -0800

Promises to Keep: Changing the Way We Provide Care at the End of Life published by the National Coalition on Health Care and The Institute for Healthcare Improvement. in October, 2000. This report presents the stories of institutions and organizations that made a commitment to change and innovation to improve care at the end of life. The profiles presented in this report reflect some of the most promising pioneering efforts underway in the field of palliative care. RAND’s Center to Improve Care of the Dying (CICD) staff worked closely with the National Advisory Panel of Americans for Better Care of the Dying to develop selection criteria for groups profiled.

Reluctant Realism - Latino Perspective on End of Life Issues

Thu, 3 Nov 2005 10:00:49 -0800

Reluctant Realism
by Margaret R. McLean and Margaret A. Graham published in Issues in Ethics, Winter, 2003 Volume 14, Number 1, Markkula Center for Applied Ethics, Santa Clara University pp. 7-9.

To assist in the goal of improving the Latino health care experience in the San Jose community, 66 adults agreed to participate in a series of three focus group sessions that explored their attitudes and concerns regarding end-of-life care. This article presents their views of death and dying, their interactions with the health care system, and their concerns about discussing these issues with their families.

Sutter Care at Home

Sat, 28 Jan 2012 17:56:55 -0800

Formerly Sutter VNA & Hospice and before that Home Hospice of Sonoma County & the oldest hospice in Sonoma County. Sutter Care at Home extends the continuum of health care from hospitals and doctors' offfices directly into patients' homes, where they receive medical attention, education, and compassionate care needed to recover or live with illness to the fullest extent possible. There focus is to keep families together during a stressful time, and we care for the whole family with social services and emotional support. For many patients, we are all that stands between them and the "revolving door" of repeated hospitalizations, emergency room visits, or nursing facilities .

Time to address the need to improve end of life care by Susan Keller

Sat, 28 Jan 2012 14:05:27 -0800

Susan Keller, Executive Director of the Community Network, wrote this piece at the request of the Press Democrat for the Close to Home feature in the Sunday edition. The aim was to help inform the community given all the rhetoric at the national level about "death panels" with regards to national health care reform. This essay was published online Sept 19, 2009 and in the Sunday print edition Sept 20, 2009. Includes photo of Susan Keller.