Caring Community - Models & Research

How Hospitals Shape End of Life

Mon, 15 Jan 2007 08:18:25 -0800

How Hospitals Shape End of Life Care
Summary of Sharon. Kaufman, PhD Presentation to
California Coalition for Compassionate Care
Steering Committee Meeting June 3, 2005
Excerpted from Minutes of Meeting

Sharon Kaufman, Ph.D. Professor of Medical Anthropology at UC San Francisco recently published a book entitled, And a Time to Die: How American Hospitals Shape the End of Life. (2005, NY: Scribner). Dr. Kaufman said in her role as a medical anthropologist she “makes the strange, familiar; and makes the familiar, strange.” She described her recent research about the culture of hospitals and how they influence the “problem of death,” which she defined as people dying with too much technology and not enough humanity.

A MODEL TO GUIDE HOSPICE PALLIATIVE CARE BASED ON NATIONAL PRINCIPLESAND NORMS OF PRACTICE

Wed, 25 Jan 2012 18:11:24 -0800

In a consensus–building process led by the Standards Committee of the Canadian Hospice Palliative Care Association, providers, organizations and consumers joined to share their experiences and develop a clear vision for hospice palliative care that everyone could use. The resulting model represents more than 10 years of collaboration by individuals, committees, associations and governments across Canada and is based on the nationally accepted principles and norms of practice.

A Framework For Thinking Ethically

Thu, 3 Nov 2005 09:26:07 -0800

A Framework For Thinking Ethically
Markkula Center for Applied Ethics, Santa Clara University
This document is designed as an introduction to thinking ethically. We all have an image of our “better selves” - or of how we are when we act ethically or are “at our best.” We probably also have an image of what an ethical community, an ethical business, or an ethical government is - and maybe even an ethical society as a whole. Ethics really has to do with all three levels - acting ethically as individuals, creating ethical organizations and governments, and making our society as a whole ethical in the way it treats all.

American Geriatrics Society (AGS)

Sun, 6 Jun 2010 17:17:20 -0700

Excellent resources for health in aging. Tip sheets and lots of how to for caregivers.

Americans for Better Care of the Dying

Tue, 5 Apr 2011 21:35:46 -0700

Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.

Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and other end-of-life organizations to make change happen.

ABCD President Joanne Lynn, MD is one of the foremost national leaders in this movement and the author of Handbook for Mortals: Guidance for People Facing Serious Illness; and Improving Care for the End of Life.

Approaching death : improving care at the end of life

Fri, 1 Oct 2004 21:24:14 -0700

Report of the Institute of Medicine (IOM) study study that which examined issues related to dying, decisionmaking, and appropriate care and selectively focus on several narrower topics. The group concluded that although much is being done to improve the care of critically ill and dying patients, many questions remain to be persuasively answered—or, for that matter, asked—about what constitutes appropriate care for different kinds of patients and how choices about care for dying patients can best be made and implemented.

Attitudes Toward End of Life Care In California

Sun, 11 Feb 2007 13:58:52 -0800

California HealthCare Foundation’s online resource for independent research, analysis, and news on issues affecting health care delivery and financing with including in depth looks at Chronic Disease Care, Long Term Care and End of Life Care.

Attitudes Toward End-of-Life Care in California
Lake Research Partners, November 2006

While it’s true that Americans are living longer, there is a flip side. The aging population is grappling with new challenges, including an increasing number of chronic illnesses and a range of sensitive issues brought about by modern medicine and end-of-life medical care.

Californians' End-of-Life Care Differs by Race and Ethnicity

Wed, 18 Apr 2007 16:38:19 -0700

This important study and related reports released by the California Healthcare Foundation in March 16, 2007 reports that: In California, the most populous and diverse state in the country, significant racial and ethnic differences exist at the end of life. These reports â�� the first in a new series of CHCF-supported projects focusing on end-of-life issues - found significant variations in the expectations, experiences, and decisions of patients and their families in the months preceding death.

“As California’s diverse population grows older, ensuring quality care at the end of life for everyone takes on even greater significance,” Mark D. Smith, M.D., M.B.A., president and CEO of CHCF, said Thursday at the Association of Health Care Journalists conference in Los Angeles. “By supporting research and projects to improve the quality of end-of-life care, CHCF sees an opportunity to help make California a national example of best medical practices and culturally appropriate care.”

Care of the Patient with Severe Chronic Illness – An Online Report on the Medicare Program.

Wed, 25 Jan 2012 18:27:18 -0800

Care of the Patient with Severe Chronic Illness-An Online Report on the Medicare Program is a key critical report completed in 2006 by the Dartmouth Atlas Project. It reports that: “Almost one-third of Medicare spending for chronically ill is unnecessary… A fundamental problem, and one that contributes to both overspending and worse outcomes, is that most acute care hospitals have become first-line providers of services to chronically ill elderly people, whose care would be better managed, safer and less expensive outside the hospital setting. . . . Staggering variations in how hospitals care for chronically ill elderly patients indicate serious problems with quality of care and point toward unnecessary spending by Medicare. Lower utilization of acute care hospitals and physician visits could actually lead to better results for patients and prolong the solvency of the Medicare program.” The study calls for overhauling how the nation manages chronic illness, and proposes that hospitals take leadership in redesigning how they care for the chronically ill.

Caring Connections - It's About How You LIVE

Sat, 3 Jan 2009 11:23:23 -0800

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.

Caring Connections
-Provides free resources, information and motivation for actively learning about end-of-life resources.
-Promotes awareness of and engagement in efforts to increase access to quality end-of-life care.
-Helps people connect with the resources they need, when they need them.
-Brings together community, state and national partners working to improve end-of-life care.

Caring Conversations

Wed, 25 Jan 2012 18:30:05 -0800

*Caring Conversations* was developed by the Center for Practical Bioethics as a consumer education initiative to help individuals and their families share meaningful conversation while making practical preparations for end-of-life decisions.

Caring Conversations is endorsed by the National Hospice and Palliative Care Association and is a recommended resource by AARP and Bill Moyers' outreach materials for his PBS series, On Our Own Terms.

The goals of Caring Conversations:
·To shift the focus of advance care planning to include conversations with family and friends
·To provide community education

Caring Resources Guide

Sat, 28 Jan 2012 18:22:59 -0800

Caring Resources Guide (by the Compassionate Care Alliance of Monterey County) provides links to what may be among the best articles on the web or websites that discuss the many issues about serious illness, caregiving, end-of-life, and grief recovery. Includes information about diagnosis and prognosis, learning how to cope, disease management, and so much more as "A Gateway to Informatioin, Care Choices and Planning."

Center for Practical Bioethics Resource Links

Wed, 25 Jan 2012 18:39:35 -0800

The Center for Practical Bioethics offers a variety of publications, video and audiotapes designed to enhance ethics education and promote discussion of ethics issues. Links are provided for free material and for items to purchase via their online store.

Center for Practical Bioethics-Case Studies at the Crossroads of decision

Wed, 25 Jan 2012 18:41:03 -0800

Case studies provide a way for us to analyze and think-through difficult medical and moral situations. This Center for Practical Bioethics webpage links you to stories that will challenge you to think clearly as you consider options at the crossroads of decision.

Center to Advance Palliative Care (CAPC)

Sat, 28 Jan 2012 17:48:03 -0800

The Center to Advance Palliative Care (CAPC) is a national initiative supported by The Robert Wood Johnson Foundation, with direction and technical assistance provided by the Mount Sinai School of Medicine (NY). CAPC provides health care professionals with the tools and training necessary to start and sustain successful palliative care programs.

CAPC publishes The Case for Hospital-Based Palliative Care-Why leading hospitals are starting palliative care programs to provide high-quality, effective management of advanced illness. Other publications include The Guide to Building A Hospital-Based Palliative Care Program, a how-to handbook with step-by-step guidance.