The Coda Alliance is a collaborative in Silicon Valley that share the goal to implement social change in end-of-life care. Their mission is to provide practical skills and tools to plan and receive care wanted at the end of life. They publish the “Go Wish” cards in English and Spanish for assisting with advance care planning and thinking about end of life wishes.
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Commonweal is a small twenty-seven-year-old health and environmental research institute in the Point Reyes National Seashore outside the coastal town of Bolinas, California.
Our principal areas of work are with (1) people with cancer and health professionals who work with people with life-threatening illnesses; (2) children and young adults with learning and social difficulties, and the childcare professionals who work with them; and (3) the global search for a healthy and sustainable future.
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Compassion & Choices is a non-profit organization dedicated to improving care and expanding choice at the end of life. They provide free client services to the terminally ill and do legal advocacy through the courts and legislatures. They inform and educate the public through the media and other outreach programs.
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An interactive CD-ROM and Web Site inviting patients and families to learn about the practical, emotional, spiritual and medical issues faced by those dealing with advanced illness.
Visit Completing A Life
A gressroots project to improve end of life care, this film sheds light on the 21st century American struggle with communication and preparation at the end-of-life. Throughout the film, there are intimate accounts of the emotional, spiritual, physical and social burdens associated with the historical shift that has occurred with dying. Forty years ago, most people experienced a quick death, but today we are more likely to suffer a slow, incremental dying process.
Consider the Conversation examines ... Read More
In thousands of ways, social workers help people help themselves. People of every age. From every background. In every corner of the country - wherever we’re needed - starting here and now. Welcome to your source for professional advice, inspiring stories - even a social worker directory. Social workers. Help starts here. This website is provided by the National Association of Social Workers and includes sections on Seniors and Aging, Issues and Answers, Mind and Spirit. The Senior section includes ... Read More
Controlar su Dolor — Taking Control of Your Pain, Partners Against Pain
Each multilingual booklet has the English version on the left-hand page, and the other language on the facing page. These booklets were developed in an effort to provide culturally sensitive and linguistically appropriate resources for patients.
Developed by Boston Cancer Pain Education Program - Nursing Committee, Massachusetts Division of American Cancer Society (Grant from Purdue Pharma L.P.)
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For more than 20 years, the Dartmouth Atlas Project has documented glaring variations in how medical resources are distributed and used in the United States. The project uses Medicare data to provide information and analysis about national, regional, and local markets, as well as hospitals and their affiliated physicians. This research has helped policymakers, the media, health care analysts and others improve their understanding of our health care system and forms the foundation for many of the ... Read More
[Difficult Decisions for Those Close to Us]
Hank Dunn 2002
Hard Choices for Loving People: CPR, Artificial Feeding, Comfort Care, and the Patient with a Life-Threatening Illness. Good resource with information to address end of life decisions such as the use of respirators, dialysis, antibiotics, hydration and nutrition and more.
Obtain from: A & A Publishers, Inc. P.O. Box 1098, Herndon, VA 20172-1098. (703) 707-0169 or www.hardchoices.com ... Read More
“Diario de Evaluación de la Comodidad” – Socios contra el dolor. This spiral bound booklet is designed to help cancer patients describe the type and severity of their pain. Answers patients’ common questions about pain medication and teaches them how to record pain ratings and other symptoms on a daily basis.
Obtain from: Iowa Cancer Pain Relief Initiative, c/o Rhana Kelderman. Tel: 515-253-0147; Fax: 515-253-0806. No fee.