The Journey Project and End of Life Care Alliance are actively involved in cutting edge work aimed at improving quality of care and life through life’s end. In addition to Models and Research, we also provides links to a number of continuing educational opportunities. Our favorite calendars for upcoming conferences and trainings provided by professional associations are linked here as well.
Under Legislative, Regulatory, and Finance, you can access current bills, legislative committees, statues, regulatory agencies and related material. Links are included to analytical reports including reports addressing financing issues.
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.
Provides free resources, information and motivation for actively learning about end-of-life resources.
Promotes awareness of and engagement in efforts to increase access to quality end-of-life care.
Helps people connect with the resources ... Read More
Caring Conversations was developed by the Center for Practical Bioethics as a consumer education initiative to help individuals and their families share meaningful conversation while making practical preparations for end-of-life decisions. It is designed to guide you, your family and friends through the process of advance care planning.
Caring Conversations is endorsed by the National Hospice and Palliative Care Association and is a recommended resource by AARP and Bill Moyers' outreach materials ... Read More
A Type III Interdisciplinary Research Center based at the University of South Florida Colleges of Medicine, Nursing and the College of Arts and Sciences, focusing on Quality of Life Research primarily at the End of Life.
Visit Center for Hospice, Palliative Care, and End of Life Studies at the University of South Florida
The Center for Practical Bioethics offers a variety of publications, video and audiotapes designed to enhance ethics education and promote discussion of ethics issues. Links are provided for free material and for items to purchase via their online store.
Visit Center for Practical Bioethics Resource Links
Case studies provide a way for us to analyze and think-through difficult medical and moral situations. This Center for Practical Bioethics webpage links you to stories that will challenge you to think clearly as you consider options at the crossroads of decision.
Visit Center for Practical Bioethics-Case Studies at the Crossroads of decision
The Center to Advance Palliative Care (CAPC) is a national initiative supported by The Robert Wood Johnson Foundation, with direction and technical assistance provided by the Mount Sinai School of Medicine (NY). CAPC provides health care professionals with the tools and training necessary to start and sustain successful palliative care programs.
CAPC publishes The Case for Hospital-Based Palliative Care-Why leading hospitals are starting palliative care programs to provide high-quality, effective ... Read More
Children's Hospice and Palliative Care Coalition of California is a group of organizations, institutions and individuals from throughout the State of California working together to promote compassionate medical care which includes spiritual, emotional and financial support for children with life-threatening illnesses. ...because when a child has a serious illness, medicine is not enough...
Visit Children's Hospice & Palliative Care Coalition ... Read More
The Chinese American Coalition for Compassionate Care, the only organization in the nation devoted to end-of-life concerns in the Chinese community, is an active working coalition of over 80 organizations and a total of almost 1300 individuals.
The CACCC was formed in December 2005 to address the lack of linguistically and culturally appropriate end-of-life information and training available to the Chinese community and those who serve it. The CACCC incorporated in 2007, and achieved 501c3 tax-exempt ... Read More
The Coalition for Compassionate Care of California (CCCC) is a statewide partnership of more than 95 regional and statewide organizations promoting high quality compassionate end of life care for all Californians. The California POLST Program is led by the CCCC with statewide POLST efforts guided by a 75 -member POLST Task Force. Local efforts to promote POLST and provide education were led statewide by 18 funded POLST coalitions including the Sonoma County Coalition for Compassionate Care, a program ... Read More
The Coda Alliance is a collaborative in Silicon Valley that share the goal to implement social change in end-of-life care. Their mission is to provide practical skills and tools to plan and receive care wanted at the end of life. They publish the “Go Wish” cards in English and Spanish for assisting with advance care planning and thinking about end of life wishes.
Visit Coda Alliance