The quality of care provided to persons near the end of life would be captured reasonably well by measuring the nine domains listed in this statement. The tools to do so need development, and funders and researchers should attend to this work. As adequate measurement tools are developed, they should be incorporated into the continuous quality improvement for care systems. With all possible haste, benchmarks of quality in good systems need to be made available. Eventually, information about the performance ... Read More
Founded in 1997, the American Pain Foundation is an independent nonprofit 501(c)3 organization serving people with pain through information, advocacy, and support. Their mission is to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management.
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Founded in 1872, the American Public Health Association (APHA) is the oldest, largest and most diverse organization of public health professionals in the world. The association works to protect all Americans and their communities from preventable, serious health threats. APHA represents a broad array of health officials, educators, environmentalists, policy-makers and health providers at all levels working both within and outside governmental organizations and educational institutions. Information ... Read More
Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding.
Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and ... Read More
The Center to Advance Palliative Care (CAPC) is a national initiative supported by The Robert Wood Johnson Foundation, with direction and technical assistance provided by the Mount Sinai School of Medicine (NY). CAPC provides health care professionals with the tools and training necessary to start and sustain successful palliative care programs.
CAPC publishes The Case for Hospital-Based Palliative Care-Why leading hospitals are starting palliative care programs to provide high-quality, effective ... Read More
Children's Hospice and Palliative Care Coalition of California is a group of organizations, institutions and individuals from throughout the State of California working together to promote compassionate medical care which includes spiritual, emotional and financial support for children with life-threatening illnesses. ...because when a child has a serious illness, medicine is not enough...
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The Coalition for Compassionate Care of California (CCCC) is a statewide partnership of more than 95 regional and statewide organizations promoting high quality compassionate end of life care for all Californians. The California POLST Program is led by the CCCC with statewide POLST efforts guided by a 75 -member POLST Task Force. Local efforts to promote POLST and provide education were led statewide by 18 funded POLST coalitions including the Sonoma County Coalition for Compassionate Care, a program ... Read More
The Community Network for Appropriate Technologies was incorporated in 1978 as a federally recognized nonprofit, tax-exempt educational and charitable organization. Susan Keller, Executive Director and Principal Planner, founded the Community Network based on principles which she developed and employed in the Midwest while facilitating creation of a nationally prominent library council.
The general focus of our work is the development of cooperative working relationships within individual ... Read More
Compassion & Choices is a non-profit organization dedicated to improving care and expanding choice at the end of life. They provide free client services to the terminally ill and do legal advocacy through the courts and legislatures. They inform and educate the public through the media and other outreach programs.
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"Quality of life is the gold standard in palliative care. Francis Mueller, MD, Calistoga, California.
Through the Journey Project, the Community Network builds upon nearly two decades of work advocating for quality, affordable neighborhood-based long-term care. Educational programming, strategic planning services, and publications offered draw upon a variety of perspectives representing the personal and professional experiences of those involved.
The basic premise of Journey Project ... Read More