In this section, you will find resources that are most helpful for living with dying. The section on comprehensive materials helps people living with life-threatening illness, caregivers and family members learn about things of value to help ease the pain of transition through life’s end. In the section title: Key Articles you will find links to articles that are topic specific and some of the best that literature has to offer. Links are provided to other sites known for the quality of educational material that they provide for caregivers, patients, and family members.
The California Hospice and Palliative Care Association advocates for those facing life-threatening illnesses. They provide technical resources to their members, monitor legislative and regulatory activities, and work closely with other organizations that share an interest in end of life care. They serve both California and Nevada.
They partner with the California Hospice Foundation, to offer public and professional educational programs and materials to enhance understanding and availability of ... Read More
This important study and related reports released by the California Healthcare Foundation in March 16, 2007 reports that: In California, the most populous and diverse state in the country, significant racial and ethnic differences exist at the end of life. These reports are the first in a new series of CHCF-supported projects focusing on end-of-life issues - found significant variations in the expectations, experiences, and decisions of patients and their families in the months preceding death.
“As ... Read More
CancerCare is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance.
visit Cancer Care
The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). The NCI, established under the National Cancer Act of 1937, is the Federal Government's principal agency for cancer research and training. The National Cancer Act of 1971 broadened the scope and responsibilities of the NCI and created the National Cancer Program. Over the years, legislative ... Read More
Care of the Patient with Severe Chronic Illness-An Online Report on the Medicare Program is a key critical report completed in 2006 by the Dartmouth Atlas Project. It reports that: “Almost one-third of Medicare spending for chronically ill is unnecessary… A fundamental problem, and one that contributes to both overspending and worse outcomes, is that most acute care hospitals have become first-line providers of services to chronically ill elderly people, whose care would be better managed, safer ... Read More
Caregiver Support Groups
Please See “Contact Information” on Support Group home page when contact is (—)
Family & Friends-When Someone You Love Is Sick (HoPe)
A drop-in group for family and friends of someone with a life threatening illness. This group provides the opportunity to: Give and receive support; Share experiences of coping with a loved one’s illness; Learn self-care and coping skills; Receive information about community resources.
First and third Thursday of each month ... Read More
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.
Provides free resources, information and motivation for actively learning about end-of-life resources.
Promotes awareness of and engagement in efforts to increase access to quality end-of-life care.
Helps people connect with the resources ... Read More
Caring Conversations was developed by the Center for Practical Bioethics as a consumer education initiative to help individuals and their families share meaningful conversation while making practical preparations for end-of-life decisions. It is designed to guide you, your family and friends through the process of advance care planning.
Caring Conversations is endorsed by the National Hospice and Palliative Care Association and is a recommended resource by AARP and Bill Moyers' outreach materials ... Read More