In this section, you will find resources that are most helpful for living with dying. The section on comprehensive materials helps people living with life-threatening illness, caregivers and family members learn about things of value to help ease the pain of transition through life’s end. In the section title: Key Articles you will find links to articles that are topic specific and some of the best that literature has to offer. Links are provided to other sites known for the quality of educational material that they provide for caregivers, patients, and family members.
If English is not a patient's native tongue, one of the following 18 translations of the 0 to 10 numeric pain rating scale may be useful. Pain measurement tools can be accessed in multiple languages here at this site. Included here is a downloadable assessment form that doctors often use to help create a more complete picture of your pain, including questions regarding the effectiveness of pain medications you've taken, side effects of these medications, and the effect your pain has had on your mood, ... Read More
California HealthCare Foundation’s online resource for independent research, analysis, and news on issues affecting health care delivery and financing with including in depth looks at Chronic Disease Care, Long Term Care and End of Life Care.
Attitudes Toward End-of-Life Care in California
Lake Research Partners, November 2006
While it’s true that Americans are living longer, there is a flip side. The aging population is grappling with new challenges, including an increasing number of ... Read More
[Medicare Benefits For Hospice]
2003 Publication # CMS 02154-S Translated version of English Medicare Benefits booklet. Centro de Servicios de Medicare y Medicaid — 7500 Security Boulevard, Baltimore, MD 21244-1850
Obtain from: Department of Health and Human Services 1-800-633-4227. (Can order a limited amount free of charge.)
There is a great divide separating the kind of care Americans say they want at the end of life and what our culture currently provides. Surveys show that we want to die at home, free of pain, surrounded by the people we love. But the vast majority of us die in the hospital, alone, and experiencing unnecessary discomfort. Bill Moyers goes from the bedsides of the dying to the front lines of a movement to improve end-of-life care in ON OUR OWN TERMS: Moyers on Dying. Two years in production, this four-part, ... Read More
These pages are where the questions and responses to bioethical issues are located. Bioethical questions may have significance for all of society and therefore the general public as well as ethicists should get involved and express what they think. Participants may write about any of the topics or invite discussion with a new topic.
Visit Bioethics Discussion Pages
California’s Medi-Cal Pediatric Palliative Care Benefit (Partners for Children). The Partners for Children demonstration project, a result of CHPCC’s public policy work, helps California families to address the challenges that accompany life-threatening childhood illness, without asking them to sacrifice hope for their child’s survival.
Currently there are ten California pilot counties, including Fresno, Los Angeles, Marin Monterey, Orange, San Diego, San Francisco, Santa Clara, Santa Cruz, ... Read More
Committee Jurisdiction: Primary jurisdiction includes area agencies on aging, California Department of Aging, long-term supports and services, Older Americans Act, Older Californians Act, senior citizen advocacy activities, the California Senior Legislature, services for seniors in residential and day settings and the California Commission on Aging.
The committee phone number is (916) 319-3990.
Visit Ca State Assembly Committee on Aging and Long Term Care ... Read More
The California Association of Public Authorities, or CAPA, was created to provide proactive leadership to improve the In-Home Supportive Services (IHSS) program; promote the general interests of the active members; promote higher professional standards, and through the exchange of information and ideas, stimulate a collegial and cooperative spirit among the membership.
Visit California Association of Public Authorities for In-Home Supportive Services ... Read More