In this section, you will find resources that are most helpful for living with dying. The section on comprehensive materials helps people living with life-threatening illness, caregivers and family members learn about things of value to help ease the pain of transition through life’s end. In the section title: Key Articles you will find links to articles that are topic specific and some of the best that literature has to offer. Links are provided to other sites known for the quality of educational material that they provide for caregivers, patients, and family members.

Time to address the need to improve end of life care by Susan Keller

Susan Keller, Executive Director of the Community Network, wrote this piece at the request of the Press Democrat for the Close to Home feature in the Sunday edition. The aim was to help inform the community given all the rhetoric at the national level about "death panels" with regards to national health care reform. This essay was published online Sept 19, 2009 and in the Sunday print edition Sept 20, 2009. Includes photo of Susan Keller. Visit Time to address the need to improve end of life care ... Read More

TIME: Toolkit of Instruments to Measure End of Life Care

A fundamental barrier in the quality of care at the end of life is the lack of measurement tools. These measurement tools should identify opportunities for improving medical care, examining the impact of interventions or demonstration programs, and holding institutions accountable for their quality of care. The Toolkit takes steps toward crossing this measurement barrier by creating patient-focused, family-centered survey instruments that address the needs and concerns of patients and their families, ... Read More

United Hospital Fund of New York City

The United Hospital Fund’s mission is to shape positive change in health care for the people of New York. They advance policies and support programs that promote high quality, patient-centered health care services that are accessible to all. They undertake research and policy analysis to improve the financing and delivery of care in hospitals, clinics, nursing homes, and other care settings. They raise funds and give grants to examine emerging issues and stimulate innovative programs. And they ... Read More