As professional planners working in the elder care field since the mid-1980’s, we are aware of the shining stars of elder care and end of life care. Annotated links will take you to model project sites and provide you with research needed to substantiate a shift toward community-based long-term care and palliative care. Current Issues are included to help keep ourselves and others abreast of matters affecting our work and communities of concern. The Journey Project Resource Center houses in-depth research collection far expanded beyond the representative sampling provided herein.

Kelly Corrigan – Author & Breast Cancer Survivor

Kelly Corrigan – Author & Breast Cancer Survivor For years, Kelly Corrigan had a how-to website to help people step right up when a friend had breast cancer. From the heart info included: Upon first hearing the news; boosting her spirits, helping her family, supporting chemo treatments, and talking to your friend, for her husband or other partner. Now as a New York Times best selling author and public speaker, she continues her work sharing her personal stories to empower people facing serious ... Read More

Last Acts

Last Acts was a national coalition of organizations engaged in an unprecedented education campaign to improve care for people who are dying and their families from late 1990s through 2004. Last Acts served as a clearinghouse for sharing information and ideas at the national, state and local levels. Last Acts provided a forum for discussion, collaboration and broad dissemination of new information. Much of this info is still available via this site and related links. Visit Last Acts ... Read More

Last Acts Print Materials on Palliative Care for Professionals

The Robert Wood Johnson Foundation Last Acts Program spearheaded the national movement in the late 1990s on into 2004. Incredible research and publishing was completed during that period and available through this site along with more current publications.

Visit Last Acts Print Materials on Palliative Care for Professionals

Living Old: Frontline November 21, 2006

Living Old is one hour Frontline program filmed November 21, 2006 presenting a powerful and intimate journey into the uncharted territory of Americans living longer than ever — and what it means for them, their loved ones and our society. On this site you can view the whole program or individual chapters including: The Stories-Living lives that neither the elderly nor their families ever prepared for. Interviews-Doctors, one family’s story, and a conversation with a remarkable 94 year-old. The ... Read More

Markkula Center for Applied Ethics at Santa Clara University

A forum for research and discussion in all areas of applied ethics The Markkula Center for Applied Ethics at Santa Clara University is one of the preeminent centers for research and dialogue on ethical issues in critical areas of American life. The center works with faculty, staff, students, community leaders, and the public to address ethical issues more effectively in teaching, research, and action. The center’s focus areas are business, health care and biotechnology, character education, government, ... Read More

Medicaring

This site from the Washington Home Center for Palliative Care Studies offers support and resources to hospitals, nursing homes, health systems, hospices, and other organizations that serve individuals nearing the end of life and their families.

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Midwest Bioethics Center/Center for Practical Bioethics

The Center for Practical Bioethics, formerly known as the Midwest Bioethics Center, has a 20 year history of raising and responding to ethical issues in health and healthcare and works specifically in the following areas. Researchers looking for Midwest Bioethics Center publications should contact the Center for Practical Bioethics. Clinical and Organizational Ethics: solving moral problems by educating and empowering healthcare professionals and their institutions, advocating for patients’ ... Read More

National Alliance for Caregivers

The National Alliance for Caregiving was created to conduct research, do policy analysis, develop national programs and increase public awareness of family caregiving issues. The Alliance’s mission is to be the objective national resource on family caregiving with the goal of improving the quality of life for families and care recipients. Established in 1996, NCA is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, ... Read More

National Consensus Project for Quality Palliative Care

Clinical Practice Guidelines for Quality Palliative Care, a professional consensus from five major US palliative care organizations on clinical guidelines for quality palliative care services adopted in May, 2004 and updated in 2009. These guidelines have served as a foundation for the National Quality Forum Preferred Practices and have become a hallmark within the field guiding policy makers, providers, practitioners and consumers in understanding the principles of quality palliative care. In ... Read More