As professional planners working in the elder care field since the mid-1980’s, we are aware of the shining stars of elder care and end of life care. Annotated links will take you to model project sites and provide you with research needed to substantiate a shift toward community-based long-term care and palliative care. Current Issues are included to help keep ourselves and others abreast of matters affecting our work and communities of concern. The Journey Project Resource Center houses in-depth research collection far expanded beyond the representative sampling provided herein.
Caring Resources Guide (by the Compassionate Care Alliance of Monterey County) provides links to what may be among the best articles on the web or websites that discuss the many issues about serious illness, caregiving, end-of-life, and grief recovery. Includes information about diagnosis and prognosis, learning how to cope, disease management, and so much more as "A Gateway to Information, Care Choices and Planning."
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The Center for Practical Bioethics offers a variety of publications, video and audiotapes designed to enhance ethics education and promote discussion of ethics issues. Links are provided for free material and for items to purchase via their online store.
Visit Center for Practical Bioethics Resource Links
Case studies provide a way for us to analyze and think-through difficult medical and moral situations. This Center for Practical Bioethics webpage links you to stories that will challenge you to think clearly as you consider options at the crossroads of decision.
Visit Center for Practical Bioethics-Case Studies at the Crossroads of decision
The Center to Advance Palliative Care (CAPC) is a national initiative supported by The Robert Wood Johnson Foundation, with direction and technical assistance provided by the Mount Sinai School of Medicine (NY). CAPC provides health care professionals with the tools and training necessary to start and sustain successful palliative care programs.
CAPC publishes The Case for Hospital-Based Palliative Care-Why leading hospitals are starting palliative care programs to provide high-quality, effective ... Read More
Children's Hospice and Palliative Care Coalition of California is a group of organizations, institutions and individuals from throughout the State of California working together to promote compassionate medical care which includes spiritual, emotional and financial support for children with life-threatening illnesses. ...because when a child has a serious illness, medicine is not enough...
Visit Children's Hospice & Palliative Care Coalition ... Read More
A well-indexed comprehensive site on all related topics. Palliative Care section includes recommended books with order info, Guidelines/Clinical Practices, Educational Material/Curriculum, and Excellent Organization Links.
Visit City of Hope/ Pain and Palliative Care Resource Center
The Coalition for Compassionate Care of California (CCCC) is a statewide partnership of more than 95 regional and statewide organizations promoting high quality compassionate end of life care for all Californians. The California POLST Program is led by the CCCC with statewide POLST efforts guided by a 75 -member POLST Task Force. Local efforts to promote POLST and provide education were led statewide by 18 funded POLST coalitions including the Sonoma County Coalition for Compassionate Care, a program ... Read More
The Coda Alliance is a collaborative in Silicon Valley that share the goal to implement social change in end-of-life care. Their mission is to provide practical skills and tools to plan and receive care wanted at the end of life. They publish the “Go Wish” cards in English and Spanish for assisting with advance care planning and thinking about end of life wishes.
Visit Coda Alliance
The Community Network for Appropriate Technologies was incorporated in 1978 as a federally recognized nonprofit, tax-exempt educational and charitable organization. Susan Keller, Executive Director and Principal Planner, founded the Community Network based on principles which she developed and employed in the Midwest while facilitating creation of a nationally prominent library council.
The general focus of our work is the development of cooperative working relationships within individual ... Read More
A gressroots project to improve end of life care, this film sheds light on the 21st century American struggle with communication and preparation at the end-of-life. Throughout the film, there are intimate accounts of the emotional, spiritual, physical and social burdens associated with the historical shift that has occurred with dying. Forty years ago, most people experienced a quick death, but today we are more likely to suffer a slow, incremental dying process.
Consider the Conversation examines ... Read More