As professional planners working in the elder care field since the mid-1980’s, we are aware of the shining stars of elder care and end of life care. Annotated links will take you to model project sites and provide you with research needed to substantiate a shift toward community-based long-term care and palliative care. Current Issues are included to help keep ourselves and others abreast of matters affecting our work and communities of concern. The Journey Project Resource Center houses in-depth research collection far expanded beyond the representative sampling provided herein.

A Framework For Thinking Ethically

A Framework For Thinking Ethically Markkula Center for Applied Ethics, Santa Clara University This document is designed as an introduction to thinking ethically. We all have an image of our “better selves” - or of how we are when we act ethically or are “at our best.” We probably also have an image of what an ethical community, an ethical business, or an ethical government is - and maybe even an ethical society as a whole. Ethics really has to do with all three levels - acting ethically ... Read More

A MODEL TO GUIDE HOSPICE PALLIATIVE CARE BASED ON NATIONAL PRINCIPLES AND NORMS OF PRACTICE

In a consensus–building process led by the Standards Committee of the Canadian Hospice Palliative Care Association, providers, organizations and consumers joined to share their experiences and develop a clear vision for hospice palliative care that everyone could use. The resulting model represents more than 10 years of collaboration by individuals, committees, associations and governments across Canada and is based on the nationally accepted principles and norms of practice. Visit A MODEL TO ... Read More

Americans for Better Care of the Dying

Americans for Better Care of the Dying goals are to: build momentum for reform; explore new methods and systems for delivering care; and shape public policy through evidence-based understanding. Every dying person needs to be able to count on excellent care. Americans for Better Care of the Dying (ABCD) aims to improve end-of-life care by learning which social and political changes will lead to enduring, efficient, and effective programs. ABCD works with the public, clinicians, policymakers, and ... Read More

Approaching death: improving care at the end of life

Report of the Institute of Medicine (IOM) study study that which examined issues related to dying, decisionmaking, and appropriate care and selectively focus on several narrower topics. The group concluded that although much is being done to improve the care of critically ill and dying patients, many questions remain to be persuasively answered—or, for that matter, asked—about what constitutes appropriate care for different kinds of patients and how choices about care for dying patients can best ... Read More

Attitudes Toward End of Life Care In California

California HealthCare Foundation’s online resource for independent research, analysis, and news on issues affecting health care delivery and financing with including in depth looks at Chronic Disease Care, Long Term Care and End of Life Care. Attitudes Toward End-of-Life Care in California Lake Research Partners, November 2006 While it’s true that Americans are living longer, there is a flip side. The aging population is grappling with new challenges, including an increasing number of ... Read More

Californians’ End-of-Life Care Differs by Race and Ethnicity

This important study and related reports released by the California Healthcare Foundation in March 16, 2007 reports that: In California, the most populous and diverse state in the country, significant racial and ethnic differences exist at the end of life. These reports are the first in a new series of CHCF-supported projects focusing on end-of-life issues - found significant variations in the expectations, experiences, and decisions of patients and their families in the months preceding death. “As ... Read More

Care of the Patient with Severe Chronic Illness – An Online Report on the Medicare Program.

Care of the Patient with Severe Chronic Illness-An Online Report on the Medicare Program is a key critical report completed in 2006 by the Dartmouth Atlas Project. It reports that: “Almost one-third of Medicare spending for chronically ill is unnecessary… A fundamental problem, and one that contributes to both overspending and worse outcomes, is that most acute care hospitals have become first-line providers of services to chronically ill elderly people, whose care would be better managed, safer ... Read More

Caring Connections – It’s About How You LIVE

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation. Caring Connections Provides free resources, information and motivation for actively learning about end-of-life resources. Promotes awareness of and engagement in efforts to increase access to quality end-of-life care. Helps people connect with the resources ... Read More

Caring Conversations

Caring Conversations was developed by the Center for Practical Bioethics as a consumer education initiative to help individuals and their families share meaningful conversation while making practical preparations for end-of-life decisions. It is designed to guide you, your family and friends through the process of advance care planning. Caring Conversations is endorsed by the National Hospice and Palliative Care Association and is a recommended resource by AARP and Bill Moyers' outreach materials ... Read More