In this section, you will find resources that are most helpful for living with dying. The section on comprehensive materials helps people living with life-threatening illness, caregivers and family members learn about things of value to help ease the pain of transition through life’s end. In the section title: Key Articles you will find links to articles that are topic specific and some of the best that literature has to offer. Links are provided to other sites known for the quality of educational material that they provide for caregivers, patients, and family members.

A Caregiver’s Challenge

Maryann Schacht, MSW, BCD, is an author, speaker, and workshop leader with more than 30 years experience working with families in crisis. Her book titled A Caregiver’s Challenge: Living, Loving, Letting Go offers a road map and survival guide to everyone who is suddenly thrust into a caregiver role. She combines her personal experience caring for her terminally ill husband with her professional expertise in this invaluable resource. A Caregiver’s Challenge offers support, resources, and useful ... Read More

A Framework For Thinking Ethically

A Framework For Thinking Ethically Markkula Center for Applied Ethics, Santa Clara University This document is designed as an introduction to thinking ethically. We all have an image of our “better selves” - or of how we are when we act ethically or are “at our best.” We probably also have an image of what an ethical community, an ethical business, or an ethical government is - and maybe even an ethical society as a whole. Ethics really has to do with all three levels - acting ethically ... Read More

A MODEL TO GUIDE HOSPICE PALLIATIVE CARE BASED ON NATIONAL PRINCIPLES AND NORMS OF PRACTICE

In a consensus–building process led by the Standards Committee of the Canadian Hospice Palliative Care Association, providers, organizations and consumers joined to share their experiences and develop a clear vision for hospice palliative care that everyone could use. The resulting model represents more than 10 years of collaboration by individuals, committees, associations and governments across Canada and is based on the nationally accepted principles and norms of practice. Visit A MODEL TO ... Read More

Acerca de la Tristeza

[Grieving]

Booklet addressing grief in simple Spanish with appropriate illustrations. There are other booklets available that deal with a variety of end-of-life issues. All are excellent resources.

Obtain from: National Hospice Organization – 1901 North Moore St, Ste 901 Arlington, Virginia 22209 (703) 243-5900 (1995) Fee.

Adult Children Support Groups

Adult Children Support Groups Please See “Contact Information” on Support Group home page when contact is (—) Daughters Grieving Their Mothers 8 week group. Call to register for next series. (SV&H) Adult Grief Services A safe, structured place to share. 8-Week Grief Support Group (Evening and Daytime) (HoPe, MH) Groups offered in January, April, June, & September Parent Loss Support Group Groups offered in January, April, June, & September. An 8-week group for adult ... Read More

Advance Health Care Directive (English and Spanish)

The Advance Health Care Directive is a legally binding form that lets you exercise your right to give instructions about your own health care and/or to name someone else to make health care decisions for you in the event you are unable to speak for yourself. If you use this form, you may complete or modify all or any part of it. You are free to use a different form. In any case, agents designated and signatures required must be done in the manner prescribed on this form and mandated by the California ... Read More

AGS Measuring Quality of Care at the End of Life: A Statement of Principles

The quality of care provided to persons near the end of life would be captured reasonably well by measuring the nine domains listed in this statement. The tools to do so need development, and funders and researchers should attend to this work. As adequate measurement tools are developed, they should be incorporated into the continuous quality improvement for care systems. With all possible haste, benchmarks of quality in good systems need to be made available. Eventually, information about the performance ... Read More

ALS Association

The ALS Association relentlessly pursues its mission to help people living with ALS and to leave no stone unturned in search for the cure of Amyotrophic Lateral Sclerosis, the progressive neurodegenerative disease that took the life and name of Baseball Legend Lou Gehrig.

Visit ALS Association