To insure that your wishes for care through the ending of life are known and honored, it is essential to have thoughtful conversations with family members, friends and health care providers who may assist you in case of life-threatening illness. This section of our website provides you with some good guides to help begin and complete such conversations. If you have questions or need further assistance with these matters, please feel free to seek our advice via email request.
This site is of value wherever you may live and provides user friendly videos and resources to make advance care planning so much easier for people to do. Videos are organized by: family stories; how to begin the conversation; faith, culture and identity perspectives; advance directives and decision making. Honoring Choices Minnesota hopes to inspire and support many community-based conversations regarding end-of-life care planning. It encourages people to start such conversations in their family, ... Read More
"Quality of life is the gold standard in palliative care. Francis Mueller, MD, Calistoga, California.
Through the Journey Project, the Community Network builds upon nearly two decades of work advocating for quality, affordable neighborhood-based long-term care. Educational programming, strategic planning services, and publications offered draw upon a variety of perspectives representing the personal and professional experiences of those involved.
The basic premise of Journey Project ... Read More
Free, convenient advice and support via your computer. Link2Care if for caregivers caring for people with dementia and covers every facet of caregiving for this population. You'll find help with care planning and decision making, timely articles, and a community of caring friends. You can consult an expert, one-on-one, for medical, legal and caregiving advice-it's all free, all available at your convenience. And the site is a secure, password protected site, for your privacy and confidentiality. ... Read More
The Center for Practical Bioethics, formerly known as the Midwest Bioethics Center, has a 20 year history of raising and responding to ethical issues in health and healthcare and works specifically in the following areas. Researchers looking for Midwest Bioethics Center publications should contact the Center for Practical Bioethics.
Clinical and Organizational Ethics: solving moral problems by educating and empowering healthcare professionals and their institutions, advocating for patients’ ... Read More
The On Our Own Terms website (associated with the PBS Bill Moyers video series on Death and Dying) offers excellent resources for discussion about death and dying. The On Our Own Terms Discussion Guide can be accessed via the Resources tab and downloaded. This discussion guide is an invaluable resource.
Visit Talk About It (Moyers/On Our Own Terms Forums) ... Read More
by Margaret R. McLean and Margaret A. Graham published in Issues in Ethics, Winter, 2003 Volume 14, Number 1, Markkula Center for Applied Ethics, Santa Clara University pp. 7-9.
To assist in the goal of improving the Latino health care experience in the San Jose community, 66 adults agreed to participate in a series of three focus group sessions that explored their attitudes and concerns regarding end-of-life care. This article presents their views of death and dying, their ... Read More
Respecting Choices is a model training program for facilitators who become resident experts in Advance Care Planning at health facilities and has a strong focus on organizational policy. The goal of the program is to build respect for choices into each organization's policies. A variety of posters, workbooks and planning guides are available in English and Spanish for work with consumers. The program was developed by the Gunderson Lutheran Medical Foundation (LaCrosse,Wis) in the early 1990s. It ... Read More
This workbook is designed for lay discussion leadeers. The guide proves the format and excercises for 3 sessions that give people ideas for thinking and talking about their wishes. It is published by Sacramento Healthcare Decisions, a longstanding leader in end of life care issues. This is now out of print and so may be downloaded and printed at no charge. It is available in English, Spanish and Tagalog. When visiting the publications section on this site click on End-of-Life Educational Materials ... Read More
The Conversation Project (TCP) began in 2010, when Ellen Goodman and a group of colleagues and concerned media, clergy, and medical professionals gathered to share stories of “good deaths” and “bad deaths” within their own circle of loved ones. TCP is dedicated to helping people talk about their wishes for end-of-life care.
This effort - among many others - is helping to transform our culture so we shift from not talking about dying to talking about it. Too many people are dying in ... Read More
The Four Things are everyday guides for doing the right thing, for reconciling the rifts that divide people, and for cutting through old history—because you just never know.
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